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Singapore Student Fights Rare Disorder While Pursuing Dreams

2/9/2025

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Summary

Story summary

Raphaella Gautama, a resilient 20-year-old student from Singapore, battles fibrodysplasia ossificans progressiva (FOP), a rare disorder that transforms muscle and tissue into bone, restricting her mobility. Diagnosed in 2019 after a long search for answers, she continues to chase her academic dreams at NTU, fiercely advocating for herself while navigating her challenging condition.

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Story summary

Raphaella Gautama, a resilient 20-year-old student from Singapore, battles fibrodysplasia ossificans progressiva (FOP), a rare disorder that transforms muscle and tissue into bone, restricting her mobility. Diagnosed in 2019 after a long search for answers, she continues to chase her academic dreams at NTU, fiercely advocating for herself while navigating her challenging condition.