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Experts Advocate Fair Access to Newborn Screening

2/15/2025

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Summary

Story summary

During a recent National Press Foundation webinar, experts emphasized the critical role of newborn screening for rare diseases, advocating for fair access to these vital tests. In a significant move, Washington University unveiled a Center for Rare Diseases, aiming to boost research and improve patient support, tackling the hurdles faced in accessing effective treatments.

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Story summary

During a recent National Press Foundation webinar, experts emphasized the critical role of newborn screening for rare diseases, advocating for fair access to these vital tests. In a significant move, Washington University unveiled a Center for Rare Diseases, aiming to boost research and improve patient support, tackling the hurdles faced in accessing effective treatments.