Back to today’s briefing

Story perspectives

Lobbyist Secures $33M for Jordan’s Syndrome Research Breakthrough

2/17/2025

50 8

Summary

Story summary

California lobbyist Joe Lang is on a mission to shine a light on Jordan’s Syndrome, a rare genetic disorder that impacts his daughter. His relentless advocacy spurred Shionogi to launch a clinical trial for a potential treatment. With $33 million allocated for research, Lang's efforts promise hope not just for his family, but for countless others facing similar challenges.

1 of 1

Story summary

California lobbyist Joe Lang is on a mission to shine a light on Jordan’s Syndrome, a rare genetic disorder that impacts his daughter. His relentless advocacy spurred Shionogi to launch a clinical trial for a potential treatment. With $33 million allocated for research, Lang's efforts promise hope not just for his family, but for countless others facing similar challenges.