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Florida Advances Newborn Genetic Screening, Funds Rare Disease Institute

3/25/2025

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Story summary
  • In a unanimous 25-0 vote, Florida's House Health & Human Services Committee has greenlit HB 907, paving the way for optional genetic screening of newborns. This groundbreaking bill also launches the Florida Institute for Pediatric Rare Diseases at Florida State University, backed by $25 million over five years, aiming to revolutionize the diagnosis and treatment of rare genetic disorders and elevate Florida's status in genomic medicine.