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Disabled Woman Fights for Benefits Amidst Rising Care Costs

4/1/2025

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Summary

Story summary

A woman battling hypermobile Ehlers-Danlos syndrome (hEDS) struggles to secure her Social Security Disability benefits after an automatic deposit pushed her over the $1,500 limit, triggering a deduction notice. With her family spending $3,000 to $4,000 monthly on her care, including a costly $67,000 jaw surgery labeled elective by insurance, they face relentless bureaucratic challenges.

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Story summary

A woman battling hypermobile Ehlers-Danlos syndrome (hEDS) struggles to secure her Social Security Disability benefits after an automatic deposit pushed her over the $1,500 limit, triggering a deduction notice. With her family spending $3,000 to $4,000 monthly on her care, including a costly $67,000 jaw surgery labeled elective by insurance, they face relentless bureaucratic challenges.