Story perspectives
Funding Cuts Endanger Lives in Rare Disease Research
4/26/2025
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Story summary
- Janet Edmunson passionately leads support groups for those battling rare neurological diseases, such as progressive supranuclear palsy (PSP). A recent NIH directive to slash funding for vital research threatens crucial clinical trials, including UCSF's PSP study. Advocates fear this funding cut endangers patient lives and stalls scientific advancements, leaving families in desperate need of breakthroughs.
