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Local Moms Fundraise for Daughters' Rare Gene Therapy

5/18/2025

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Summary

Story summary

In Inver Grove Heights, Minnesota, mothers Emily Knopik and Megan Hieb are on a heartfelt mission to support their daughters, Mae and Lucy, both battling the rare CTNNB1 Syndrome. They are tirelessly fundraising for a groundbreaking gene therapy trial in Europe, having already journeyed to Slovenia for crucial evaluations. Together, they embody resilience and hope in the face of adversity.

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Story summary

In Inver Grove Heights, Minnesota, mothers Emily Knopik and Megan Hieb are on a heartfelt mission to support their daughters, Mae and Lucy, both battling the rare CTNNB1 Syndrome. They are tirelessly fundraising for a groundbreaking gene therapy trial in Europe, having already journeyed to Slovenia for crucial evaluations. Together, they embody resilience and hope in the face of adversity.