Story perspectives
Coventry Mother Relieved, But Other Kids Left Behind
5/20/2025
39 5
1 of 1
Story summary
- A mother in Coventry breathed a sigh of relief as her daughter Flory, battling CLN2 Batten disease, will continue her vital treatment with Brineura. Yet, her heart aches for other children denied this lifeline, as the NHS's new deal with BioMarin still leaves new patients in the shadows due to the drug's steep price.
