Back to today’s briefing

Story perspectives

Mississippi Teen Urges FDA to Approve Vital Drug

6/6/2025

50 5

Summary

Story summary

In Rankin County, Mississippi, the FDA's delay in approving Elamipretide has left 17-year-old Christopher Pena anxious about losing the medication that empowers him to lead an active life with Barth Syndrome. His mother passionately calls for the FDA to prioritize the needs of patients battling rare diseases, emphasizing the urgency of their situation.

1 of 1

Story summary

In Rankin County, Mississippi, the FDA's delay in approving Elamipretide has left 17-year-old Christopher Pena anxious about losing the medication that empowers him to lead an active life with Barth Syndrome. His mother passionately calls for the FDA to prioritize the needs of patients battling rare diseases, emphasizing the urgency of their situation.