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States Sue 23andMe Over Genetic Data Privacy Concerns

6/13/2025

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Summary

Story summary

Twenty-seven states and the District of Columbia are taking a stand against 23andMe, suing to prevent the sale of customers' genetic data without their consent. This lawsuit, lodged in U.S. Bankruptcy Court, demands that the company secure explicit permission from each individual. As 23andMe navigates bankruptcy and a potential $256 million acquisition by Regeneron Pharmaceuticals, privacy concerns loom large.

History

Historical Context

The Genetic Information Nondiscrimination Act (GINA) was enacted in 2008 to prevent discrimination based on genetic information in employment and insurance. The ongoing lawsuit against 23andMe by 27 states highlights concerns over genetic data privacy and consent, reflecting historical debates on personal privacy rights. This case could significantly influence future data protection laws and corporate accountability in biotechnology.

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Story summary

Twenty-seven states and the District of Columbia are taking a stand against 23andMe, suing to prevent the sale of customers' genetic data without their consent. This lawsuit, lodged in U.S. Bankruptcy Court, demands that the company secure explicit permission from each individual. As 23andMe navigates bankruptcy and a potential $256 million acquisition by Regeneron Pharmaceuticals, privacy concerns loom large.

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