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Denied Grant Threatens Decade of Progress for Rare Disorder

8/7/2025

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Summary

Story summary

In mid-April, Ellyn Kodroff brought her daughter Jori to the NIH in Bethesda for a groundbreaking treatment for a rare digestive disorder. Their hopes were dashed when they discovered that a vital grant application for Jori's research was denied due to a paperwork mistake, threatening ten years of hard-won progress during a time of tightening federal funds.

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Story summary

In mid-April, Ellyn Kodroff brought her daughter Jori to the NIH in Bethesda for a groundbreaking treatment for a rare digestive disorder. Their hopes were dashed when they discovered that a vital grant application for Jori's research was denied due to a paperwork mistake, threatening ten years of hard-won progress during a time of tightening federal funds.