Story perspectives
Minneapolis Family Uses AI to Transform Rare Disease Treatment
8/30/2025
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Story summary
- A Minneapolis family discusses AI-driven treatment for their daughter Jorie, who has DeSanto-Shinawi syndrome.
- Mayo Clinic doctors used AI to find an effective medication, resulting in notable health improvements for Jorie since April 2025.
- The Kraus family founded a nonprofit, The Jorie Effect, to assist other children with rare diseases.
