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Story summary
- Teraysa, a three-year-old from Christchurch, has late infantile Batten disease, a terminal condition affecting approximately 40 UK children.
- Her family is fundraising for enzyme replacement therapy at Great Ormond Street Hospital to potentially extend her life.
- Concerns arise regarding genetic implications for her siblings, who may be carriers of the disease.
- The family is compiling a bucket list of experiences to enjoy during Teraysa's treatment.
