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Family Raises $450K for Gene Therapy Trial for Rare Disease

9/26/2025

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Summary

Story summary

Jack Drury, a two-year-old from New Jersey, was diagnosed with infantile neuroaxonal dystrophy (INAD) after a premature birth.
INAD affects under 250 children globally and has no cure.
The INADcure Foundation aims to develop gene therapy. It has partnered with Jack’s family to raise $450,000 for trials.
They seek FDA approval to start early next year, with $200,000 per child.

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Story summary

Jack Drury, a two-year-old from New Jersey, was diagnosed with infantile neuroaxonal dystrophy (INAD) after a premature birth.
INAD affects under 250 children globally and has no cure.
The INADcure Foundation aims to develop gene therapy. It has partnered with Jack’s family to raise $450,000 for trials.
They seek FDA approval to start early next year, with $200,000 per child.