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Genetic Testing Sparks IVF Hope Amid Dementia Battle

10/5/2025

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Summary

Story summary

Liv Heeney, 28, carries a faulty gene linked to early onset frontotemporal dementia, affecting 13 relatives including her mother, Bernie, who died at 54.
Genetic testing began in January 2024, with diagnosis confirmed in August.
She plans in vitro fertilization (IVF) with embryo screening to protect future children.
She will host a fundraising event for Alzheimer's Research UK in Birmingham.

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Story summary

Liv Heeney, 28, carries a faulty gene linked to early onset frontotemporal dementia, affecting 13 relatives including her mother, Bernie, who died at 54.
Genetic testing began in January 2024, with diagnosis confirmed in August.
She plans in vitro fertilization (IVF) with embryo screening to protect future children.
She will host a fundraising event for Alzheimer's Research UK in Birmingham.