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Family Battles Insurers for Aicardi Syndrome Treatment Coverage

10/8/2025

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Summary

Story summary

Emmalyn, daughter of Carrie Lazoen, has Aicardi syndrome and requires a shaky vest to clear mucus and prevent pneumonia.
United Healthcare initially denied coverage for the vest, citing Emmalyn's condition.
Most later claims were approved, but the process remains frustrating and inconsistent, and the family relies on Blue Cross Blue Shield as secondary insurance for approvals.

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Story summary

Emmalyn, daughter of Carrie Lazoen, has Aicardi syndrome and requires a shaky vest to clear mucus and prevent pneumonia.
United Healthcare initially denied coverage for the vest, citing Emmalyn's condition.
Most later claims were approved, but the process remains frustrating and inconsistent, and the family relies on Blue Cross Blue Shield as secondary insurance for approvals.