Story perspectives

Families Rally for Life-Saving Treatments Amid Financial Struggles

10/10/2025

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Summary

Story summary

A Coon Rapids family is seeking financial support for their 8-month-old daughter, Kylie, who has Spinal Muscular Atrophy (SMA).
The $2 million treatment is covered by insurance but requires a three-month isolation period, straining the family's finances.
Kylie's mother, Alyssa Lane, fears for her daughter's future, as untreated SMA typically leads to a life expectancy of two years.
In New Zealand, 15-month-old Katana Morunga faces Dnm2 congenital myopathy, making her vulnerable to infections, which worries her mother, Angelica Pohamara.

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Story summary

A Coon Rapids family is seeking financial support for their 8-month-old daughter, Kylie, who has Spinal Muscular Atrophy (SMA).
The $2 million treatment is covered by insurance but requires a three-month isolation period, straining the family's finances.
Kylie's mother, Alyssa Lane, fears for her daughter's future, as untreated SMA typically leads to a life expectancy of two years.
In New Zealand, 15-month-old Katana Morunga faces Dnm2 congenital myopathy, making her vulnerable to infections, which worries her mother, Angelica Pohamara.