Story perspectives
New York Launches First Frontotemporal Degeneration Research Registry
10/22/2025
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Story summary
- New York becomes the first state to establish a Frontotemporal Degeneration Research Registry, signed into law by Governor Kathy Hochul.
- Senator Michelle Hinchey and Assemblymember Amy Paulin sponsored the legislation to track diagnoses and raise FTD awareness.
- FTD is the most common dementia in people under 60.
- The registry could enable faster diagnoses, quantify FTD’s impact, and spur public research funding.
