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4-Year-Old Raises $1.15M for Rare Disease Treatment

11/6/2025

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Summary

Story summary

Cade Jobsis, the 4-year-old son of the Jobsis family, will begin treatment in Texas in early December after raising $1.15 million for his clinical trial.
Emma Jobsis stresses the need for accessible clinical trials for rare diseases, citing gaps in research and funding.
The family previously raised $3 million with other families for the drug's cost and discovered an additional $1.15 million was needed for hospital treatment.

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Story summary

Cade Jobsis, the 4-year-old son of the Jobsis family, will begin treatment in Texas in early December after raising $1.15 million for his clinical trial.
Emma Jobsis stresses the need for accessible clinical trials for rare diseases, citing gaps in research and funding.
The family previously raised $3 million with other families for the drug's cost and discovered an additional $1.15 million was needed for hospital treatment.