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Story summary
- Jacalyn Lee, founder of The Dand Alliance in Dobbs Ferry, leads a nonprofit to raise awareness and funds for DEAF-1 Associated Neurodevelopmental Disorder (DAND), which the organization notes is rising in diagnoses.
- DAND affects fewer than 1 in 50,000 people.
- Lee and four other mothers have raised $65,000.
- The group aims to reach $300,000 to fund critical research.
- Their long-term goal is $4 million to develop treatments.
