Story perspectives

£1.79 Million Zolgensma Transforms Life for Young Edward

12/31/2025

Summary

Story summary

Edward, a five-year-old boy from Colchester, England, has begun walking independently after receiving Zolgensma, which costs £1.79 million.
Edward has spinal muscular atrophy (SMA).
He has started school and made friends.
His mother, Megan, credits his improvement to Zolgensma and private physiotherapy funded by a £170,000 fundraising campaign.
NHS England notes the transformative effects of Zolgensma and expects it to help many children with SMA reach adulthood.

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Story summary

Edward, a five-year-old boy from Colchester, England, has begun walking independently after receiving Zolgensma, which costs £1.79 million.
Edward has spinal muscular atrophy (SMA).
He has started school and made friends.
His mother, Megan, credits his improvement to Zolgensma and private physiotherapy funded by a £170,000 fundraising campaign.
NHS England notes the transformative effects of Zolgensma and expects it to help many children with SMA reach adulthood.