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Jesy Nelson Advocates Early SMA Detection for Newborns

1/5/2026

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Summary

Story summary

Jesy Nelson revealed that her twin daughters Ocean Jade and Story Monroe have spinal muscular atrophy Type 1 and face mobility challenges.
In an emotional video, Nelson described months of hospital visits and movement concerns.
Nelson urged early detection and asked parents to recognize signs like floppiness and rapid breathing.
She highlighted the need to include SMA in newborn screening, noting the UK is lagging.

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Story summary

Jesy Nelson revealed that her twin daughters Ocean Jade and Story Monroe have spinal muscular atrophy Type 1 and face mobility challenges.
In an emotional video, Nelson described months of hospital visits and movement concerns.
Nelson urged early detection and asked parents to recognize signs like floppiness and rapid breathing.
She highlighted the need to include SMA in newborn screening, noting the UK is lagging.