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Emma Fogarty Defies Odds, Inspires with Resilience Memoir

1/5/2026

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Summary

Story summary

Emma Fogarty, a 41-year-old from Co. Laois, Ireland, lives with Epidermolysis Bullosa and has defied doctors’ predictions by living beyond the week given at her birth.
She has endured a leg amputation and is wheelchair-bound.
With actor Colin Farrell, whom she met at a 2010 charity event, she helped raise nearly €1 million for EB awareness, and her memoir Being Emma aims to educate others and inspire resilience.

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Story summary

Emma Fogarty, a 41-year-old from Co. Laois, Ireland, lives with Epidermolysis Bullosa and has defied doctors’ predictions by living beyond the week given at her birth.
She has endured a leg amputation and is wheelchair-bound.
With actor Colin Farrell, whom she met at a 2010 charity event, she helped raise nearly €1 million for EB awareness, and her memoir Being Emma aims to educate others and inspire resilience.