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Jesy Nelson Advocates for SMA Newborn Screening After Twins' Diagnosis

1/7/2026

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Summary

Story summary

Jesy Nelson (former Little Mix member) reveals her twin daughters Ocean Jade and Story Monroe have Spinal Muscular Atrophy (SMA) Type 1 and may never walk.
She plans to petition for SMA newborn screening, noting other countries use heel-prick tests for early diagnosis.
Health Secretary Wes Streeting supports her efforts to improve UK screening.
The case underscores the urgency of early detection and potential UK screening improvements.

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Story summary

Jesy Nelson (former Little Mix member) reveals her twin daughters Ocean Jade and Story Monroe have Spinal Muscular Atrophy (SMA) Type 1 and may never walk.
She plans to petition for SMA newborn screening, noting other countries use heel-prick tests for early diagnosis.
Health Secretary Wes Streeting supports her efforts to improve UK screening.
The case underscores the urgency of early detection and potential UK screening improvements.