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Story perspectives

Jesy Nelson Advocates for SMA Screening in UK Tests

1/10/2026

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Story summary
  • Jesy Nelson, a former Little Mix star, calls for Spinal Muscular Atrophy (SMA) screening in the UK's heel-prick tests after her twins were diagnosed with SMA type 1.
  • SMA screening is not available in the UK, though Scotland plans to implement it in spring.
  • Wes Streeting, Health Secretary, acknowledged Nelson's concerns about lengthy diagnosis process.
  • Parents and medical professionals urge expanded testing, noting early detection can improve outcomes for children.