Story perspectives

New Jersey Mom Raises Awareness on CSF Leaks Journey

1/18/2026

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Summary

Story summary

Liz Vassallo, a 42-year-old mother from New Jersey, endured months of debilitating headaches misattributed to migraines before diagnosis.
Her husband, Chris, researched cerebrospinal fluid leaks after the symptoms worsened.
After consulting 20 specialists, Liz was diagnosed with spontaneous intracranial hypotension due to a CSF leak.
She underwent a targeted epidural blood patch, gaining some relief.
They share their journey on TikTok to raise awareness about CSF leaks and self-advocacy.

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Story summary

Liz Vassallo, a 42-year-old mother from New Jersey, endured months of debilitating headaches misattributed to migraines before diagnosis.
Her husband, Chris, researched cerebrospinal fluid leaks after the symptoms worsened.
After consulting 20 specialists, Liz was diagnosed with spontaneous intracranial hypotension due to a CSF leak.
She underwent a targeted epidural blood patch, gaining some relief.
They share their journey on TikTok to raise awareness about CSF leaks and self-advocacy.