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Mother's Hopeful Fight for Son's Sanfilippo Treatment

1/28/2026

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Summary

Story summary

Tammy McDaid of Swansea awaits US approval of UX111 for her five-year-old son Tate's Sanfilippo Syndrome, hoping it slows progression.
She has raised £35,000 for a clinical trial but needs more for treatment and monitoring in the United States.
Tammy remains hopeful about Tate's future and values support from his school and the community.
The family has made memories with Tate, including a recent holiday in Fuerteventura.

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Story summary

Tammy McDaid of Swansea awaits US approval of UX111 for her five-year-old son Tate's Sanfilippo Syndrome, hoping it slows progression.
She has raised £35,000 for a clinical trial but needs more for treatment and monitoring in the United States.
Tammy remains hopeful about Tate's future and values support from his school and the community.
The family has made memories with Tate, including a recent holiday in Fuerteventura.