Back to today’s briefing

Story perspectives

Health Trust's Oversight Sparks SUDEP Awareness for Families

3/11/2026

24 5 Full Breakdown

Summary

Story summary

An inquest found the South Eastern Health Trust failed to conduct Nicola Burns's annual review.
The trust has since developed a Sudden Unexpected Death in Epilepsy (SUDEP) advice document for patients.
Nicola Burns was diagnosed with nocturnal seizures in her 20s.
Jo-Ann Burns, Nicola’s mother, says they were unaware of SUDEP risks.
Her family hopes increased awareness will prevent similar tragedies.

1 of 1

Story summary

An inquest found the South Eastern Health Trust failed to conduct Nicola Burns's annual review.
The trust has since developed a Sudden Unexpected Death in Epilepsy (SUDEP) advice document for patients.
Nicola Burns was diagnosed with nocturnal seizures in her 20s.
Jo-Ann Burns, Nicola’s mother, says they were unaware of SUDEP risks.
Her family hopes increased awareness will prevent similar tragedies.