Story perspectives

Campaigners Demand Better ME Services Amid Healthcare Gaps

3/23/2026

Summary

Story summary

Tomos Sleep, 28-year-old from Swansea, has been bedridden since 2023 after diagnosis of severe myalgic encephalomyelitis.
His parents say healthcare system is inadequate for severe ME.
Fflur Evans and Alwen Davies, diagnosed with moderate ME, report pain and lifestyle changes.
Campaigners urge the Welsh government to establish a national expert group and improve ME services.
Experts call for more funding and understanding of ME research to support those affected.

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Story summary

Tomos Sleep, 28-year-old from Swansea, has been bedridden since 2023 after diagnosis of severe myalgic encephalomyelitis.
His parents say healthcare system is inadequate for severe ME.
Fflur Evans and Alwen Davies, diagnosed with moderate ME, report pain and lifestyle changes.
Campaigners urge the Welsh government to establish a national expert group and improve ME services.
Experts call for more funding and understanding of ME research to support those affected.