Story perspectives

Baton Rouge Parents Raise INAD Awareness with Children's Book

4/3/2026

Summary

Story summary

Charles Duplechain and Curtshandra Duplechain of Baton Rouge, Louisiana, raise awareness for Infantile Neuroaxonal Dystrophy (INAD) affecting their daughters Jade and Ivory.
INAD affects about one in a million children and causes loss of movement and speech.
They published a children's book titled The Super Sisters And Their Rare Pet Zebra, illustrated by Emery, to share their experience, educate readers about INAD, and support gene therapy research.

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Story summary

Charles Duplechain and Curtshandra Duplechain of Baton Rouge, Louisiana, raise awareness for Infantile Neuroaxonal Dystrophy (INAD) affecting their daughters Jade and Ivory.
INAD affects about one in a million children and causes loss of movement and speech.
They published a children's book titled The Super Sisters And Their Rare Pet Zebra, illustrated by Emery, to share their experience, educate readers about INAD, and support gene therapy research.