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Missouri Law Creates June’s Week for Rare Pediatric Diseases

7/23/2026

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Story summary
  • June Steinmeyer, diagnosed with a peach-sized ATRT brain tumor in May 2025, entered remission after surgery, radiation, stem-cell harvest and chemotherapy.
  • Missouri State Rep. Mike Steinmeyer sponsored legislation creating June’s Week, Rare Pediatric Disease Week, and a University of Missouri task force to track outcomes.
  • Governor Mike Kehoe signed the legislation into law.
  • June’s mother Hailey Steinmeyer said the week will support Missouri families facing rare illnesses.