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Family Fights Rare Disorder, Aims to Raise $1.5M

1/30/2025

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Summary

Story summary

In a heartfelt battle against a rare genetic disorder, the Purdy family from Murrieta, CA, is determined to find a cure for their son Paxton. With no treatment available, they are rallying support to raise $1.5 million for a clinical trial. Their nonprofit, Cure CLCN6, has already garnered over $60,000 through inspiring fundraising efforts.

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Story summary

In a heartfelt battle against a rare genetic disorder, the Purdy family from Murrieta, CA, is determined to find a cure for their son Paxton. With no treatment available, they are rallying support to raise $1.5 million for a clinical trial. Their nonprofit, Cure CLCN6, has already garnered over $60,000 through inspiring fundraising efforts.