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Full Breakdown

AI Photo Alteration Sparks Concern Over Representation of Rare Skin Condition

By Drooid · · How we work

In this breakdown

01

Core Event

Rhiannon, a 30-year-old who lives with epidermolytic ichthyosis—a rare genetic disorder that causes rapid skin growth, blistering and mobility challenges—discovered that an AI-driven feature in Canva had altered her photograph for a work newsletter. The software was instructed only to rearrange images, yet the final version smoothed her hard skin, removed the pink hue of her hands and changed other visible traits. Rhiannon saw the edited image before distribution and described the experience as “jarring,” noting that the changes erased visual markers of the obstacles she has overcome.

02

Background & Context

Canva’s platform offers AI tools that can automatically enhance or retouch photos. Users typically rely on these features for aesthetic polish, but the company states that automatic retouching is not enabled by default. In this case, the AI appears to have applied conventional beauty standards, inadvertently erasing characteristics linked to a medical condition.

03

Official Statements & Responses

The statement underscores the company’s intent to investigate the unintended alteration and to uphold accurate representation for all users.

04

Verbatim Quotes

  • “When I'm out in public I expect stares or comments but when it comes to you in your workplace or at home it feels a bit more personal,” — Rhiannon
  • “It was one of those really jarring moments where I thought I don't know who that person is.” — Rhiannon

05

Impact and Concerns

Rhiannon’s account highlights broader worries that AI-based image processing may unintentionally marginalize individuals with visible differences. By smoothing skin and altering coloration, the technology can diminish personal identity and the visibility of lived experiences tied to medical conditions. The incident raises questions about the transparency of AI actions within design tools and the need for safeguards that respect diverse appearances.